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cryoglobulinemia vasculitis awareness
School teacher suddenly notices two strange bumps on her foot that look like a spider bite, but she soon gets redness, swelling and pain in her feet and legs. Eventually, most of her legs turn black and doctors are about to amputate. Dr. Diane Dike finds out that she has a rare disorder called cryoglobulinemia. First aired 3-10-10
This CVO website offers a wide variety of up-to-date resources, information, videos, links, personal stories, connection to our Facebook CVO support group; information about awareness; highlights on topics of interest and related conditions; and clinical trial information if one should become available. CVO offers telephone support, the Dr. Diane Dike Radio Show, weekly online gatherings and e-mail correspondence.
This site is a safe place for people to come for support, encouragement and education. We are glad you found us.
CVO is an outreach of Second Chance with Saving Grace, Inc. SCwSG is a 501c(3) nonprofit organization whose mission is to educate, encourage, enrich and help hurting people and animals. CVO was established to unite patients and the medical community in managing and drawing attention to cryoglobulinemia, a rare blood disease that the founder/director has battled for 30 years.
Cryoglobulinemia is the presence of abnormal proteins in the blood. These abnormal proteins become thick or gel-like in cold temperatures and during patient stress. When the cryoglobulines cluster together they cause damage and inflammation of the blood vessels throughout the body that can lead to organ failure and death.
Visit DianeDike.org or cryoglobulinemiavasculitis.org to learn more!
Detailed picture that includes signs and symptoms of cryoglobulinemia
Living with Cryoglobulinemia can be isolating and disabling. Prevention of flare ups is key.
CVO's mission is to champion advocacy programs regarding the care, treatment, research, diagnosis and the use of service dogs for those suffering from cryoglobulinemia and associated conditions. CVO educates patients, healthcare professionals and the public, to bring about greater awareness and to support patients, families, and those who love them. CVO is the first and oldest organization of its kind in the world earning recognition as a resource for patients, caregivers, medical professionals, and researchers.