The disease is rare and few have seen what it can do to the body so we are sharing these photos for educational purposes. This is what a manifestation and painful episode can look like on the outside. Because of neuropathy, sometimes patients can't tell they are getting cold until it's too late. PREVENTION is key. Once you've gotten cold you've gone out of your safe place and must get warm immediately. Most patients have found a warm hot tub (102) to be the best and quickest way to warm up. However, that can cause complications with ulcerated sores, increase possibility of infection and is not always an option. This is why prevention is so important for the caretaker and patient to remember.