Cryoglobulinemia Vasculitis Organization Disclaimer
If you are seeking a diagnosis or in need of medical advice, please contact your doctor immediately. This site is meant to be an additional tool to support you, not treat you. Also, please understand that we are not responsible for any information posted by others on our sites, or links directing you outside our sites. By entering, you are agreeing to absolve the website’s owners and hold them harmless from the results of any actions taken based on information or advice presented on this site.
Privacy Policy
CVO does not require any sharing of medical information. Any information collected in any form on our online forms, such as e-mail and/or contact information, is accessible only within CVO and will never be passed on to any outside party, unless required by law. CVO does not share, sell, or give away contact information. All personal stories and pictures posted have been done so with approval of all parties involved.
Funding
Funding for this website comes from donations, sale of CVO store items, speaking engagements by the spokesperson, founder and her service dog, and grants when they are available. No funding will create conflicts of interest; nor does it influence the content of the website.
Respect
Please do not use any CVO information, its Facebook support group, email addresses or links to send solicitations or marketing messages for any purpose. Any posts on the Facebook CVO page or in private messages to the members must go through the founder, Dr. Diane Dike if they include information that could be viewed as advertisement, solicitation, fundraising, events, or anything outside of CVO activites. We do not want members to fall away because of misuse of information by group members.
We Are Better Together
Now that formalities are over, please get warm and safe with us by finding hope, encouragement, strength and knowledge! Together we will improve the quality of life and understanding for patients, families, friends and caregivers. Welcome to our CVO family. Thank you for helping us to increase education, understanding and awareness!
Stay Warm, Strong and Courageous,
Putting unity back in our community!
Your CVO Team!
We are so glad you are here. You may be here because you were recently diagnosed with cryogloublinemia or know someone who has. Maybe you’ve had this disease for several years or you’re in the medical industry just doing some research. No matter the reason, we hope you find this site useful and informative. We created this site to pass on knowledge, experience and advice gathered from cryoglobulinemia patients, our members, and information we have obtained through our own research and networking. We offer ideas on how to overcome common challenges of living with cryoglobulinemia. Please do not let this replace any guidance from a physician. We are not medical professionals.